Information Booklets & Assent Forms

Children have the right to know in advance which medicines they need and why. They should be allowed to express their own views and granted the right to participate in the decision-making process concerning their own health.

Moving from such assumptions, the DEEP Project has developed age-tailored information booklets and assent forms to explain the clinical trial procedures to the children involved in DEEP-2 in the six languages of the Project. The materials have been developed within a collaborative effort between pharmacologists, paediatricians, child psychologists and illustrators. Their aim is to inform children on deferiprone use, on the final objectives of the trial they are involved in, and on the importance of such research.